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Fabry RegistryReporting. Collaborating. Advancing.Fabry Registry
 
Health Care Professionals  
The Fabry Registry is an ongoing, observational database that tracks natural history and outcomes of patients with Fabry disease. Evaluate trends. Explore issues. Share observations. The Fabry Registry is your resource:
Patients & Families  
Are you looking for a way to contribute first-hand to a larger goal that may help you and other people living with Fabry disease? Ask your doctor about participating in the Fabry Registry:

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Physician Online Enrollment

Participation in the Fabry Registry is open to all physicians managing patients with Fabry disease. Physician enrollment in the Registry is simple. Complete the Physician Enrollment Form by clicking on the link below.

  Online Physician Enrollment

Related Links & Downloads

   Registry Materials

  Fabry Protocol (PDF)



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