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Health Care Professionals
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Understand 
To enhance understanding of the disease and to evaluate the effectiveness of available treatment.
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Participate
To collect clinical data on patient outcomes to help optimize patient care and to help the Fabry medical community with the development of recommendations for monitoring patients.
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Evaluate
To help physicians monitor their patients’ disease status as well as to provide aggregate data to describe the Fabry population as a whole.
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Registry Login 
Forget your password?
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Submit Data Electronically
Your site may have the opportunity to submit data to the Fabry Registry electronically with
the Electronic Data Capture and Reporting (EDCR) program.
Contact the Registry for more information.
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Physician Online Enrollment
Participation in the Fabry Registry is open to all
physicians managing patients with Fabry disease. Physician
enrollment in the Registry is simple. Complete the
Physician Enrollment Form by clicking on the link below.
 Online Physician Enrollment
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Related Links & Downloads
Registry Materials
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 Fabry Protocol (PDF) |
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