Physician Enrollment

All physicians who are managing hemizygous male and heterozygous female patients with Fabry disease are encouraged to participate in the Fabry Registry. Physicians can enroll in the Fabry Registry online or by printing the physician enrollment form and faxing to the Fabry Registry. Once the Fabry Registry has processed the Physician Enrollment Form, you will receive a Physician ID Number confirming your enrollment as a participating physician in the Fabry Registry

If you belong to an institution with multiple physicians participating in the Fabry Registry, a Study Coordinator should be designated as the primary contact person who will be responsible for submitting patient data. Please complete the Study Coordinator Contact Information portion of the Physician Enrollment Form. Large institutions may have more than one Study Coordinator.

  Online Physician Enrollment
  Download Physician Enrollment Form (PDF)