Confidentiality

Patient Confidentiality
To maintain patient confidentiality, all patients are referenced by Fabry Registry identification (ID) number and initials. If supplemental laboratory or imaging reports are submitted to the Fabry Registry, the patient’s name should be deleted and the patient’s initials and ID number should be added to each attached page.

Physician Confidentiality
The Fabry registry maintains confidentiality of physician information and physician specific patient data in accordance with applicable laws related to the confidentiality of patient information. No physician-to-physician data comparisons will be made.