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Gaucher Registry
Health Care Professionals  
The International Collaborative Gaucher Group (ICGG) Gaucher Registry is the largest cooperative, observational registry on Gaucher disease. It was established in 1991 as a longitudinal database tracking outcomes of routine clinical practice. The Gaucher Registry is sponsored by Genzyme Corporation. By January 2007, data from over 4585 patients with Gaucher disease have been collected from physicians in 56 countries. 

Learn more about the Gaucher Registry in the following sections:
Patients & Families  
Are you looking for a way to contribute first-hand to a larger goal that may help you and other people living with Gaucher disease? Ask your doctor about participating in the Gaucher Registry.

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What's New

Now available to order for U.S. Registry physicians and healthcare advocates - notable publications from the Gaucher Registry and clinically useful Registry reports.

Reprint Request Form
Registry Report Request (PDF)

Physician Online Enrollment

Participation in the Gaucher Registry is open to all physicians managing patients with Gaucher disease. Physician enrollment in the Registry is simple. Complete the Physician Enrollment Form by clicking on the link below.

  Online Physician Enrollment

Related Links & Downloads

   Registry Materials

  Physician Enrollment Form (PDF)
  Patient Authorization Form



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