Submit Data

It is recommended that data collection for the Gaucher Registry be accomplished through the use of electronic CRFs (eCRFs) in an Electronic Data Capture and Reporting (EDCR) system. This Internet-based application allows sites to submit data directly to the Gaucher Registry without the need for paper-based CRFs. An EDCR user manual is available to sites that choose to collect data via the EDCR system; this manual provides a very detailed description of the data collection process.

If electronic data collection is not feasible at your site, data may be collected using paper CRFs. You may contact your Gaucher Registry representative for more information about paper-based data collection.

Data Submission Process