ICGG Coordinators

Scientific direction is provided to the Gaucher Registry by an independent group of physicians, the International Collaborative Gaucher Group (ICGG) Coordinators, who have extensive experience in managing patients with Gaucher disease. These physicians serve as primary liaisons between the Gaucher community and the Registry in their geographic regions. Some of the activities in which the ICGG Coordinators are involved include:

• Developing recommendations for monitoring Gaucher disease patients
• Reviewing Gaucher Registry Clinical Summary Reports and publications on Gaucher disease
• Implementing subregistries to address specific unanswered clinical questions related to Gaucher disease
• Consulting with other physicians and health care providers on the management of Gaucher patients

ICGG Coordinators:

Hans Andersson, MD
Tulane University Medical Center
New Orleans, LA, USA

Manisha Balwani, MD
Mount Sinai School of Medicine
New York city, NY, USA

Maryam Banikazemi, MD
New York University School of Medicine
New York City, NY, USA

Juan F. Cabello, MD
Universidad de Chile
Santiago, Chile

Domenica M. Cappellini, MD
Osp. Maggiore-Policlincico-Univ.
Milano, Italy

Joel Charrow, MD
Northwestern University Medical School
Children’s Memorial Hospital
Chicago, IL, USA

Patrick Deegan, MD
University of Cambridge
Cambridge, United Kingdom

Aurora Feliu, MD
Hospital J.P. Garrahan
Buenos Aries, Argentina

Sergio Franco, MD
Instituto Mexicano del Seguro Social
México City, Mexico

Gregory Grabowski, MD
Children’s Hospital Research Foundation
Cincinnati, OH, USA

Carla Hollak, MD
Academic Medical Center
Amsterdam, The Netherlands

Paige Kaplan, MD
Children’s Hospital of Philadelphia
Philadelphia, PA, USA

Priya Kishani, MD
Duke Children’s Hospital & Health Center
Durham, NC, USA

Edwin H. Kolodny, MD
New York University School of Medicine
New York, NY, USA

Adriana Linares, MD
National University of Colombia
Bogotá, Colombia

Ana Maria Martins, MD
Centro de Genética Medica
São Paulo, Brazil

Pram Mistry, MD
Yale University School of Medicine
New Haven, CT, USA

Ricardo Pires, MD
Hospital de Clinicas de Porto Alegre
Porto Alegre, Brazil

Barry Rosenbloom, MD
Tower Hematology-Oncology Medical Group
Beverly Hills, CA, USA

C. Ronald Scott, MD
University of Washington Medical Center
Seattle, WA, USA

Elisa Sobreira, MD
Santa Casa de Misericórdia de São Paulo
São Paulo, Brazil

Anna Tylki-Szymanska, MD
Children’s Memorial Health Institue
Warsaw, Poland

Ashok Vellodi, MD
Great Ormond Street Hospital for Children NHS Trust
London, United Kingdom

Stephan vom Dahl, MD
St. Franziskus-Hospital
Kolen, Germany

Neal Weinreb, MD
Oncology/Hematology Associates of West Broward PA
Coral Springs, FL, USA

Ari Zimran, MD
Sha’are Zedek Medical Center
Jerusalem, Israel