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Health Care Professionals 
The Pompe Registry is an ongoing, observational database that tracks natural history and outcomes of patients with Pompe disease.
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Patients & Families
An important program that Genzyme sponsors and administers
is the Pompe Disease Registry. A disease registry is a
database of medical information on patients with a
specific condition that can be analyzed and used by
physicians treating patients with the same condition.
Registries have proven to be especially valuable in rare
diseases like Pompe. The collective information from the
registry is used to increase the understanding of the
disease and to monitor patients over time, with the ultimate goal of improving
the clinical outcomes of patients.
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Health Care Professionals
Forget your password?
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Physician Online Enrollment
Participation in the Pompe Registry is open to all physicians managing patients
with Pompe disease. Physician enrollment in the Registry is simple. Complete the Physician Enrollment Form
by clicking on the link below.
Online Physician Enrollment
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Genzyme Corporate
