Enrollment

All physicians who are managing patients with Pompe disease are encouraged to participate in the Registry. Physician as well as patient participation is voluntary and can be terminated at any time.

All physician information will be kept confidential. Furthermore, physician-specific patient data will remain confidential and will not be released to other physicians without prior written approval. No physician-to-physician data comparisons will be made.

Physicians interested in enrolling in the Registry may begin the process by completing the Physician Enrollment Form.