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Pompe Registry
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Physician Enrollment

All physicians who are managing patients with Pompe disease are encouraged to participate in the Registry. Physicians enroll in the Registry by completing the Physician Enrollment Form.



Health Care Professionals

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Submit Data Electronically

Your site may submit data to the Pompe Registry electronically with the Electronic Data Capture and Reporting (EDCR) program. If you are not currently a member of the Pompe Registry, enroll in the Registry to begin the process for electronic data submission.



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