Health Care Professionals
The MPS I Registry is an ongoing, observational database that tracks natural history and outcomes of patients
with MPS I. It was initiated worldwide in April 2003 as
an international observational registry program sponsored by Genzyme Corporation. As of December 2011, data from over 1000 patients with MPS I have been collected from physicians in over 30 countries.
Learn more about the MPS I Registry in the following
Patients & Families
Are you looking for a way to contribute first-hand to a
larger goal that may help you and other people living with
MPS I disease? Ask your doctor about participating in
the MPS I Registry.