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MPS I Registry
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Contact Us

Contact Us

You may contact the MPS I Registry by mail, phone or fax, or use the contact form provided below.

United States & Other Non-European Countries
MPS I Registry
Genzyme Corporation
500 Kendall Street
Cambridge, MA 02142
USA

Telephone:
  800-745-4447, x15500
  617-591-5500
Fax: +617-374-7339
  Europe
MPS I Registry
Genzyme Europe BV
Gooimeer 10
1411 DD Naarden
The Netherlands

Telephone: +31-35-699-1232

Fax: +31-35-699-8688

 

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Submit Data Electronically

Your site may have the opportunity to submit data to the MPS I Registry electronically with the Electronic Data Capture and Reporting (EDCR) program. Contact the Registry for more information.

Physician Online Enrollment

Participation in the MPS I Registry is open to all physicians managing patients with MPS I disease. Physician enrollment in the Registry is simple. Complete the Physician Enrollment Form by clicking on the link below.

  Online Physician Enrollment

Related Links & Downloads

   Registry Materials

  Schedule of Assessments



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