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MPS I Registry
 Home > Health Care Professionals > Contact Us

About MPS I Disease
Overview of the Registry
Participation Process
Submit Data
Patient Monitoring
HSCT Assessment
uGAG Testing
MPS Health Assessment
Ongoing Clinical Studies
Data Reporting
Data Management
Physician Login
ERT Safety and Prescribing Information
Antibody Monitoring
Contact Us

Contact Us

You may contact the MPS I Registry by mail, phone or fax, or use the contact form provided below.

United States & Other Non-European Countries
MPS I Registry
Genzyme Corporation
500 Kendall Street
Cambridge, MA 02142

  800-745-4447, x15500
Fax: +617-374-7339
MPS I Registry
Genzyme Europe BV
Gooimeer 10
1411 DD Naarden
The Netherlands

Telephone: +31-35-699-1232

Fax: +31-35-699-8688


Fill out my online form.


Submit Data Electronically

Your site may have the opportunity to submit data to the MPS I Registry electronically with the Electronic Data Capture and Reporting (EDCR) program. Contact the Registry for more information.

Physician Online Enrollment

Participation in the MPS I Registry is open to all physicians managing patients with MPS I disease. Physician enrollment in the Registry is simple. Complete the Physician Enrollment Form by clicking on the link below.

  Online Physician Enrollment

Related Links & Downloads

   Registry Materials

  Schedule of Assessments

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