All physicians who are managing patients with MPS I disease are encouraged to participate in the MPS I Registry. Physician enrollment in the MPS I Registry is simple -- just complete the Online Physician Enrollment Form. You can also download the PDF version. Fill out the form, sign it, and fax or mail it to the MPS I Registry.
Once the MPS I Registry has processed the Physician Enrollment Form, you will receive a Physician ID Number confirming your enrollment as a participating physician in the MPS I Registry.
If you belong to an institution with multiple physicians participating in the MPS I Registry, a Study Coordinator should be designated as the primary contact person who will be responsible for submitting patient data. Please complete the Study Coordinator Contact Information portion of the Physician Enrollment Form. Large institutions may have more than one Study Coordinator.